More prayers sent for a complete recovery for your niece

So they’re still trying to find anything they can, huh?

Glory be to God

Until the genetic tests come back

Good news!
She was able to keep her food down today! She perked up a lot this evening, and even said "Home" a few times.
We were able to see her again thanks to video chat.

Awesome news!

Someone's feeling good.

That hair lol. Messy head don't care

Love the smile

Precious smile! Thanks a bunch for posting the pic and all the updates.

its great to see Curious George is there with her, he is good people!
so relieved to see her smile.

He's more mature than some people I've met.

Update

She ate quite a bit of regular food this morning. Cheerios,Applesauce,and a blueberry muffin. And it's all staying down.
They make take her feeding tube out soon.

Well here's part of a diagnosis, Gastroparesis, which basically is where the stomach has trouble pushing food out and so you throw it up. And a lot of times it can be caused a bunch of other issues.

Please watch her carefully for pressure ulcers.

Thanks!, I'll pass this on to them

dang picture teared me up. Praing for her

Boy TCM3 this sounds a lot what my daughter had from birth, Hirchsprungs disease. It has to do with the guts, there are two types, long and short gut, most newborns have the long gut and older ones the short. Not enough cells to push the stool out makes them throw up. Just sounds like a road ive been down before. All the very BEST for her!!!!!!!!!!!

Not much to update today except it was another good day of keeping food down.

Good news

Genetic test results are due back today.
Pray we get a diagnosis so they know how to treat her.

Most 3 year olds move around so much this shouldn't be a problem.

No test results yet. Olivia did still have food in her stomach this morning that should have digested. The are going to "extend" her gastro tube a little further, into her intestine now, apparently! Honestly I am not sure what this will do.My brother said he thinks she is getting biotin in the tube, twice a day. Biotin can help digest protein, fats, and carbs. They were still a little concerned about fluid in her lungs but they checked that today and it seems to be going away, so no treatment necessary for that. So pray for no pain or discomfort as they move that tube a little further. And pray for test results and a diagnosis!

prayers